KWPCSG win The Queens Award for Voluntary Service

The Queens Award for Voluntary Service has been awarded to
the Kidderminster and Worcestershire Prostate Cancer Support Group. Paul Brothwell and Mary Symons attended the Queens Garden Party at Buckingham Palace on the 23rd of May. Both were introduced to and shook hands with Camilla, Duchess of Cornwall. The award is in recognition of all the work done over the past 17 years working with men and their families after diagnosis with Prostate Cancer. The group has worked tirelessly for many years and have pushed the boundaries in providing the best possible support for Men in Worcestershire and this award is a testament to that.

 

 

St Richards Hospice ” The Mens Shed “

Matt Jackson and Terry Tromans gave a talk on how their support group have set up a voluntary working garden where men can offer their gardening skills and meet others where they can talk and share their experiences. Interestingly the Shed will be open for visitors at an event on the 8th July. More details will be provided soon.

Sue Boyes from Prostate Cancer UK on their support for Support Groups around the UK

Sue Boyes is the Support Group Development Officer for Prostate Cancer UK.
Sue gave her talk on the role that Prostate Cancer UK provides for support
groups around the country
“My role is to support the national development of new groups and to continue
our relationships with existing groups. Our priorities for 2017/18 will be to work in
geographical areas that we know to have limited or no support for men diagnosed
with prostate cancer. In conjunction with Health Professionals, survivors and other
care support services we aim to establish sustainable groups. Our second priority
is to develop online support group settings for men who may not be wish to attend
face to face groups. In particular we are looking to support gay, bisexual and men
who have sex with other men. Finally we will then be working on a programme to
support men who are on Active Surveillance, as we recognise that the concerns
and issues they face can be different to men who have already been through a
treatment plan. Of course, alongside all of this work we will be out and about
visiting our Partner and Affiliated groups. With the hope to encourage as many of
the groups as possible to participate in our research and service delivery work.”

 

Nichola Langford advising us on her role to raise a further 1 miillion pounds for the Rory Appeal over the next two years

Nicola Langford from Worcs Acute Hospital trust,receiving a cheque for £ 5000.00. in aid
of the Rory the Robot fund. The money was raised through the Support Groups own fund
raising efforts spearheaded by Brian Wilkes and Paul Markall.
Nicky Langford’s role with Worcestershire Acute Hospital Trust is to raise funds for the Rory
appeal. She has been given the task of raising a further million pounds over the next two years
to support the project ! Not an easy objective. Nicola was able to meet members of our group
during the evening who have contributed to the fund so far. She was invited to the meeting to
accept our cheque for £5000 on behalf of the fund.
We wish her well with her million pound fund raising project

Presentation by Dr Jonathon Rees

 The educational evening was a great success with the hall full.
The guests were privileged to hear Dr Jonathon Rees’s presentation on the
GP’s role in PSA testing and their role in supporting men diagnosed with
Prostate Cancer. Jonathon is a GP in the Bristol Area and is also the
Clinical Advisor to Tackle, the Prostate Cancer charity.
We have placed Jonathon”s presentation on the Download Section of
our new web site, please click on Download and read the fascinating
facts.

Jonathon is a GP partner at a large practice in N. Somerset, he has
a specialist interest in Urology and is Founder and Chair of the
Primary Care Urology Society.
He is the Clinical Advisor to Tackle Prostate Cancer ( Prostate
Cancer Support Federation )
The talk at our educational evening summarised the very varied
roles of GP’s in their support and advice to Men pre or after
prostate cancer diagnosis
With regard to patients aspirational needs for advice and care from
their GP’s and specialists, Jonathon presented “The gold standard
prostate cancer journey” a patient perspective and aspirational
needs.
There were nine (9) major points, one is selected here, you can go
onto the blog and read them all, it is well worth it.
Point 3
Men with prostate cancer have the opportunity to talk through
all available treatment options and are provided with
comprehensive information on the risks and benefits by
members of their multi disciplinary team (MDT ) in order to
make an informed decision.
As Men with Prostate Cancer and as a Support Group we are very
fortunate to have Jonathon working tirelessly to meet our
aspirations, pre diagnosis, through treatment and then again on the
long recovery road.

 

Droitwich Man’s Journey – Brian Wilkes

In Jan 2015 my brother contacted me and said he had prostate cancer. I immediately visited my GP and had a simple PSA blood test and found out after other examinations that I too had prostate cancer – hereditary perhaps
After 9 months of excellent treatment by the NHS involving MRI scans, biopsy’s, a  neuroscan and 7.5 weeks – 37 fractions of radiotherapy I decided to give something back.

I joined the Kidderminster prostate cancer support groups committee in Nov 2015 and was invited to join the Rory appeal committee to introduce the appeal to the retail sector due to my Shell retail background.

I work part-time at the Morrisons store in Bromsgrove, so I decided to approach the foundation for a grant and plan and implement a campaign of store events. In Jan 2016 I presented a case to Morrisons Directors and the case was forwarded to the trustees of the foundation. The campaign covered 11 stores in Hereford and Worcestershire, and some 15 events included bucket collections and in key stores, bag-packing by key celebrities was agreed by Morrisons senior management.

In March I was informed the trustees had awarded me with a grant of £25000 still the highest awarded to date to a charity! By the end of 2016 the 15 stores had achieved £15,585 over £ 4000 per event and the climax of the campaign was a major event at the Alexandra Hospital – significantly attended by the NHS management, leading oncology and urology surgeons and consultants and the CEO of Morrisons. The new Mark IV robotic machine, at the manufacturers expense, was on show and the media coverage from this event resulted in two large donations of £10,000 each from two benefactors.

In total during the campaign 4 live local radio programs and 26 Press articles created awareness for prostate cancer and the Rory appeal.

The campaign has now finished with a fund figure of £60,585 and the Rory Appeal has raised including the Morrisons sum over £325,000.

The robotic machine will be installed at the Alex in late June but still over the next 5 years £700,000 will have to  be raised.

On a referral note my wife and I and friends have visited the houses of parliament at the invitation of Nigel Huddleston, my local MP, where we met Robin Walker the Brexit minister and Worcester MP.

To encourage the business community of the County to get involved on the Rory Appeal I organised a business conference at Worcester Bosh HQ. involving presentations from Robin Walker and leading surgeons, and consultants who will operate the Robotic Machine together with patients who have  had a radical prostatectomy, for the removal of the prostate.

It is too early to evaluate the success of the conference but at the conference, Worcester Bosch donated £3000 and the Malvern Freemasons, £3000.

I recently attended the Morrisons teamwork conference at the Harrogate international conference centre and was awarded a gold badge and plaque for outstanding fundraising in the community.

My journey has now ended regarding fundraising and it’s back to paying bridge and walking my dog  the extra mile.